Braydon Hutchison, 11, and Melodic Caring Project founder Levi Ware jam at the Ronald McDonald House in Seattle. (Photo: Melodic Caring Project)

On Friday, Dec. 2 at Seattle Children’s Hospital, 11-year-old Braydon Hutchison was crying. It wasn’t because of his leukemia, which kept him quarantined, or the nausea and vomiting that had made him sick all day. A musician he’d never met was playing a concert across town in his honor, calling out his name to the crowd. Braydon could see the live stream on his laptop from his hospital bed, and it finally moved him to tears.

It was the best thing that ever happened to him in the hospital, Braydon said later. “It made me feel really good.”

The musician was local artist Levi Ware. The concert was the work of the Melodic Caring Project, a nonprofit startup Ware and his wife, Stephanie, founded last year with the mission of using music and technology to help kids heal.

“I’ve always felt music was for more than entertaining,” said Ware, 35. “Now, finally, with this coming together, it’s like, ‘Wow — this is really our purpose.'”

‘He wants to make the crazy go away’

The idea for Melodic Caring Project grew out of an August 2010 benefit concert Ware and other artists performed in Mount Vernon for Kaydee Curbow, a then 11-year-old Burlington girl who was battling leukemia. Treatment for the disease can leave the immune system susceptible to infection. So Kaydee, a student of a Bayview Elementary teacher who is one of Ware’s friends, could not leave the hospital.

“We thought, ‘It’s great to do this in Mt. Vernon, but we want her to know people care, so how can we make her a part of it?'” Ware said.

Ware set up a camera at the venue and told Kaydee’s family how to access the concert via Livestream. She and her mother, Patti, watched from her hospital room as people she’d never met came together in her honor.

“We called her afterward, and she was so happy,” Ware said. “That’s how Melodic Care Project was born.”

The Wares put on three more shows for Kaydee, including an emotional homecoming concert, that helped her family raise more than $5,000 for medical expenses.

At the end of the year, Levi and Stephanie made a big decision. Levi quit his day job in construction, and Stephanie quit hers in accounting, so the couple could devote themselves full time to cultivating an idea they said already feels bigger than they are. They’re starting small, but with partnerships with the Seattle Living Room Shows and the Fremont Abbey Arts Center about to kick off, they’re looking forward to helping more and bigger acts break hospitalized kids’ isolation and give them a meaningful experience.

“The staff, the nurses would come in and and watch it and say, ‘How cool that they’re doing this for you,'” Patti Curbow, Kaydee’s mom, said about her daughter’s streamed concerts. “I hope [Levi Ware] does really well with this, just because of how it’s made us feel. You can tell his heart is totally into it. He wants to help people. He wants to make the crazy go away for a while.”

Getting support

The Wares want to keep their service free to patients, and free to the hospital. So to make the project sustainable, they know, they have some work to do. Most costs so far they’ve paid out of pocket, and the Dec. 2 concert — the project’s first after the Wares’ shows for Kaydee — relied on a volunteer cameraman who used his own equipment.

Their first step is to launch an online community fundraising campaign on Kickstarter or PledgeMusic in the coming weeks. Also on the to-do list: apply for grants, scout for corporate sponsorships and host fundraisers for the nonprofit. The first fundraiser, a combination benefit that will double as a live streamed show to hospitalized kids, is scheduled for March 29.

The Wares have met one early goal to collaborate with local performance series so visiting artists can easily plug in with kids as they play. Another is to partner with hospitals that can connect artists with patients.

To set up the Dec. 2 show at Seattle Children’s, the Wares approached David Knott MT-BC, the hospital’s resident music therapist. Intrigued by the idea, Knott introduced the Wares to three young patients — including Braydon — whom he’d deemed to be “music identified,” meaning that they respond to music in ways that help them deal with pain.

When the patients’ families agreed to take part in the concert, they were told the appointed time to tune their laptops or tablets to the project’s Livestream channel for the show. Ware, who was performing live at the non-profit Q Cafe just south of the Ballard Bridge, told the crowd that night that the concert was dedicated to three special fans at Seattle Children’s.

He referenced the kids by name throughout his set while Stephanie chatted with them and their families on Livestream, occasionally stepping up to the mic to share a comment or question. One of the children, the Wares later learned, could not participate due to last-minute treatment. The other, a little girl, spent part of the concert dancing with her nurses.

Renae Knowles, Braydon’s mom, watched with her son in his hospital room. Braydon had played guitar on and off for four years. He’s been practicing daily in his new room at Seattle Ronald McDonald House since the concert, Knowles said.

“Once we streamed in, it took his mind off the bad stuff that was going on, how [Ware] called his name several times and called them rock stars,” she said. “It touched his soul that strangers would be willing to do this for someone they didn’t know.”

‘It’s about the kids’

Knott said he “applauded” the concert and looked forward to helping the project put on more.

“We’ve seen really remarkable ways music can make a difference for people,” Knott said. “Having a personal concert made for them — that’s a pretty big deal. They’ve found way to use technology to break the isolation.”

The field of music therapy struggles to quantify the benefits its practitioners see in the patients they treat. One of the most important, Knott said, is hope. When Braydon met Levi Ware weeks after the concert, he told him the experience made him want to “fight even harder” to recover his health.

Hearing that made the Wares double sure that what they’re doing is worth it.

“It’s not about the musicians. It’s about the kids,” Levi Ware said. “What’s the point of all this wonderful technology if you don’t do something good with it?”

The Melodic Caring Project will stream its next show March 10 with tourist artists at the Seattle Living Room Shows. Its next show, March 29 at the Fremont Arts Abbey, will double as a project fundraiser. Both shows will stream to patients at Seattle Children’s and a new partner, PeaceHealth St. John Medical Center.

Update: The reference to the streaming service used by Melodic Caring Project has been corrected since the original post.

Mónica Guzmán is a community strategist in startups and media and a digital life columnist for GeekWire. On every day except Sunday, you can find her tweeting away at @moniguzman, subscribe to her public Facebook posts at facebook.com/moniguzman or reach her via email. See a list of her clients on her website. Also see this archive of her weekly GeekWire columns.

Comments

  • http://twitter.com/kadeeirene kadeeirene

    This is awesome, gave me chills

  • Jerryj63

    Nice story Monica…

  • Vickie457

    Great story!  What is their Ustream URL?  Hopefully I can watch future performances

    • http://moniguzman.com Monica Guzman

      Hey @25dd4f0a23dac2b79d828ee96b65e057:disqus – thanks! The project founders clarified yesterday that it’s Livestream they use to post the videos. I updated the article with the fix, and the URL. Here it is: http://www.livestream.com/melodiccaringproject

  • BK

    Thank you for the wonderful work you are doing for the kids.  Braydon is my grandnephew and he is an absolutely amazing kid, his mom is amazing and such a positive role model too.  Hugs, love and know that this will come back to you a million fold!!!

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